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BBC News Published image copyrightReuters image captionBilly Caldwell, pictured with his mother Charlotte in 2018, needs medicinal cannabis for his rare form of epilepsy MPs and peers are calling for funding for families forced to buy medicinal cannabis for their children privately. The treatment was made legal with a prescription in 2018 for those with an exceptional clinical need . But a cross-party letter from 100 politicians says only three NHS prescriptions have been given out since, forcing families to spend thousands on private treatments. The government said it sympathised with those facing hard-to-treat conditions. The change in law came about after the high profile cases of Alfie Dingley and Billy Caldwell, who had both been denied access to cannabis oil to treat their rare forms of epilepsy. ....
Little Clover Carkeet, 22-months, has severe epilepsy which sees her sometimes suffer hundreds of seizures a week. Parents Emily and Spencer claim medicinal cannabis, prescribed through a private clinician, literally changed Clover s life and she now endures one to three seizures a week. But the treatment is unavailable on the NHS and the family fear they could run out of the expensive Bedrolite oil they currently import from Holland - if post-Brexit medication laws do not change. Emily Howis and Spencer, from Frome, Somerset, are now campaigning to make the treatment more readily available. Desperate Emily, 36, said: “At the moment it s costing about £750-a-month. ....
Brexit will end medical cannabis access for sick children Thursday, 24 December 2020 Following the end of the UK’s Brexit transition period on 1 January 2021, British children with severe medical conditions will no longer be able to access medical cannabis prescriptions. In a letter sent to stakeholders, clinics and patient groups last week, the UK Department of Health and Social Care (DHSC) cautioned that once the transition period ends, prescriptions issued in the UK will no longer be honoured by EU Member States. In practice, this means that severely epileptic children who are essentially reliant on medical cannabis will be wholly unable to access the treatment they need after Brexit, as the supply chain is based in the Netherlands. ....
Brexit blow for parents of epileptic children as supplies of cannabis oil cut off from January Parents warned it would be very dangerous to change children s medication after the end of the transition period 20 December 2020 • 6:50pm Alfie Dingley, one of the first children to receive an NHS prescription, could have his medicine supply cut on New Year s Day Credit: Stefan Rousseau/PA Epileptic children have been informed their supply of medicinal cannabis from Europe will be cut off in January after the end of the Brexit transition period. Up to 40 children with severe epilepsy could be left without medication that their parents currently import from the Netherlands. ....