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'There was no tomorrow': The rare disease that claimed Marcia's life


‘There was no tomorrow’: The rare disease that claimed Marcia’s life
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Kris Ferguson and his wife Marcia Ferguson-Roa always promised each other that if they lived to 80, they’d take their yacht out to sea and pull the plug.
But Ms Ferguson-Roa, 59, didn’t get to enjoy a final sail. She died at St Vincent’s Hospital in December a week after being diagnosed with a rare autoimmune disease called dermatomyositis. It is a variation of myositis (inflammation of the muscles) that affects the skin. ....

Christine Lowe , Carola Vinuesa , Abu Jalil , Matthew Cook , Khaidir Abu Jalil , Myositis Association Australia , Humanity Fund , Australian National University Centre For Personalised Immunology , Professor Carola Vinuesa , Australian National University , Personalised Immunology , Pharmaceutical Benefits , கிறிஸ்டின் குறைந்த , மேத்யூ சமைக்கவும் , மனிதநேயம் நிதி , ஆஸ்திரேலிய தேசிய பல்கலைக்கழகம் , தனிப்பயனாக்கப்பட்டது நோயெதிர்ப்பு , மருந்து நன்மைகள் ,

'I just want a life': Loneliest patient spends six months alone with a deadly disease


Janie Barrett/Sydney Morning Herald
Khaidir Abu Jali, 34, being treated at the Kinghorn Cancer Centre in St Vincent’s Hospital where he is receiving treatment for MDA5, a rare and severe autoimmune disease.
He is known as the “loneliest man” in Sydney’s St Vincent’s Hospital, a place where many people experience the worst moments in their lives.
In the six months that Malaysian construction engineer Khaidir Abu Jalil, 34, has been hospitalised for a rare autoimmune disease with a 50 per cent survival rate, he hasn’t had a single visitor. He knows nobody, not even a friend of a friend. His family lives in Malaysia, and don’t own a phone or have the internet at home. ....

New South Wales , Abu Jalil , Laila Girgis , Amanda Mclaughlin , Khaidir Abu Jalil , Humanity Fund , St Vincent Private Community Hospital In Griffith , Public Hospital , Leeton District , Private Community Hospital , Tierney House , Hope Healing , புதியது தெற்கு வேல்ஸ் , லைலா கிர்கிஸ் , அமண்டா ம்கிலௌஊகிலின் , மனிதநேயம் நிதி , ஸ்டம்ப் வின்சென்ட் ப்ரைவேட் சமூக மருத்துவமனை இல் கிரிஃபித் , பொது மருத்துவமனை , லீடன் மாவட்டம் , ப்ரைவேட் சமூக மருத்துவமனை , டைர்னி வீடு , நம்பிக்கை குணப்படுத்துதல் ,