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Lowcountry family raising awareness for rare diseases | News Radio 94.3 WSC

|February 28, 2021 at 8:34 PM EST - Updated February 28 at 8:34 PM
CHARLESTON, S.C. (WCSC) - Sunday marked National Rare Disease Day to raise awareness for thousands of unique and uncommon conditions.
At just two weeks old, Abby Cate Zaucha’s symptoms began baffling both her parents and doctors.
“It presented with symptoms like acid reflux or milk protein allergies,” Mother Melissa Zaucha said.
After thousands of dollars and months of trial and error, she was diagnosed with Congenital Sucrase-Isomaltase Deficiency, or CSID, which makes it impossible to break down certain sugars and starches.
The disease only affects 0.2 percent of North Americans. ....

United States , Melissa Zaucha , National Rare Disease Day , National Human Genome Institute , Abby Cate Zaucha , Congenital Sucrase Isomaltase Deficiency , National Human Genome , ஒன்றுபட்டது மாநிலங்களில் , தேசிய ரேர் நோய் நாள் , தேசிய மனிதன் மரபணு நிறுவனம் , தேசிய மனிதன் மரபணு ,

Lowcountry family raising awareness for rare diseases | 103.5 WEZL

|February 28, 2021 at 8:34 PM EST - Updated February 28 at 8:34 PM
CHARLESTON, S.C. (WCSC) - Sunday marked National Rare Disease Day to raise awareness for thousands of unique and uncommon conditions.
At just two weeks old, Abby Cate Zaucha’s symptoms began baffling both her parents and doctors.
“It presented with symptoms like acid reflux or milk protein allergies,” Mother Melissa Zaucha said.
After thousands of dollars and months of trial and error, she was diagnosed with Congenital Sucrase-Isomaltase Deficiency, or CSID, which makes it impossible to break down certain sugars and starches.
The disease only affects 0.2 percent of North Americans. ....

United States , Melissa Zaucha , National Rare Disease Day , National Human Genome Institute , Abby Cate Zaucha , Congenital Sucrase Isomaltase Deficiency , National Human Genome , ஒன்றுபட்டது மாநிலங்களில் , தேசிய ரேர் நோய் நாள் , தேசிய மனிதன் மரபணு நிறுவனம் , தேசிய மனிதன் மரபணு ,

Lowcountry family raising awareness for rare diseases | Y102.5 Charleston

Sunday marked National Rare Disease Day to raise awareness for thousands of unique and uncommon conditions. ....

United States , Melissa Zaucha , National Rare Disease Day , National Human Genome Institute , Abby Cate Zaucha , Congenital Sucrase Isomaltase Deficiency , National Human Genome , ஒன்றுபட்டது மாநிலங்களில் , தேசிய ரேர் நோய் நாள் , தேசிய மனிதன் மரபணு நிறுவனம் , தேசிய மனிதன் மரபணு ,

Lowcountry family raising awareness for rare diseases

Sunday marks National Rare Disease Day to raise awareness for thousands of unique and uncommon conditions. ....

United States , Melissa Zaucha , National Rare Disease Day , National Human Genome Institute , Abby Cate Zaucha , Congenital Sucrase Isomaltase Deficiency , National Human Genome , Rare Disease Awareness , ஒன்றுபட்டது மாநிலங்களில் , தேசிய ரேர் நோய் நாள் , தேசிய மனிதன் மரபணு நிறுவனம் , தேசிய மனிதன் மரபணு , ரேர் நோய் விழிப்புணர்வு ,

Rare Disease Awareness Day Critical As Patients Struggle During COVID Times

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February 26, 2021 (PRLEAP.COM) Health NewsNational Rare Disease Awareness Day (RDAD) takes place during the last week of February. This year, the awareness message is even more critical. The pandemic has caused numerous difficulties for rare disease patients, families, and the healthcare community. Major obstacles have included a delay in diagnoses, limited access to treatments, and the lack of clinical trials.
Helping to spread the word on awareness is Greenwich, CT- based, Fibrolamellar Cancer Foundation (FCF), a non-profit organization formed to fund research, build awareness and provide patient support for an aggressive liver cancer that strikes teens and young adults who are typically not diagnosed until the disease is in an advanced stage. FCF was founded in 2009 by 27-year-old Tucker Davis, who lost his life to Fibrolamellar on Rare Disease Day in 2010, after an 18-month fight. ....

United States , John Hopper , Marka Carles , Tucker Davis , Fibrolamellar Cancer Foundation , Health News , National Rare Disease Day , National Rare Disease Awareness Day , National Organization For Rare Disorders , National Organization Of Rare Diseases , Rare Disease Awareness Day , Rare Disease Day , Staten Island , National Organization , Rare Diseases , Connecticut State Capital , Rare Disorders , Liver Cancer , Rare Cancer , ஒன்றுபட்டது மாநிலங்களில் , ஜான் ஹாப்பர் , டக்கர் டேவிஸ் , ஆரோக்கியம் செய்தி , தேசிய ரேர் நோய் நாள் , தேசிய ரேர் நோய் விழிப்புணர்வு நாள் , தேசிய ஆர்கநைஸேஶந் க்கு ரேர் கோளாறுகள் ,