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n-Lorem Foundation Celebrates One-Year Anniversary as First and Only Organization to Offer Free, Personalized Treatment to Ultra-Rare Disease Patients


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SAN DIEGO, Jan. 26, 2021 /PRNewswire/
 n-Lorem Foundation, the first and only nonprofit organization whose mission is to create experimental antisense oligonucleotide (ASO) treatments for patients who have diseases caused by extremely rare mutations (1-30 patients worldwide) for free, for life, celebrates its first anniversary and the extraordinary progress made in 2020 toward its mission of offering immediate hope and rapid treatment to the millions of patients affected by ultra-rare mutations.
In its first 12 months of operation, n-Lorem Foundation received applications to treat 50 patients, is proceeding to treat nearly 20 of those patients and helped two clinical investigators obtain experimental ASO treatments for nine patients – greatly exceeding applicant and acceptance rate expectations. Leveraging the powerful ASO technology developed at Ionis Pharmaceuticals, the foundation has established quality processes so that only appropriate pat ....

South Korea , Stanley Crooke , Tracy Johnson , Stanleyt Crooke , Joseph Gleeson , Kelley Dalby , Lorem Foundation , Drug Administration , Access To Treatment Committee , Ionis Pharmaceuticals , Korea Institute Of Toxicology , Rady Children , Treatment Committee , Executive Director , Charles River Labs , Korea Institute , N Lorem Foundation , தெற்கு கொரியா , சுவடு ஜான்சன் , ஜோசப் க்ளீசன் , கெலீ டால்பி , லோரெம் அடித்தளம் , நுழைவு க்கு சிகிச்சை குழு , கொரியா நிறுவனம் ஆஃப் நச்சுயியல் , கதிர் குழந்தைகள் , சிகிச்சை குழு ,

lm to old too be this stressed about the future of our nation - Chicago Heights, IL Patch


lm to old too be this stressed about the future of our nation
lm to old too be this stressed about the future of our nation
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