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[Rare Disease Day] Health advocacy groups press for government policy, say India s numbers unknown
The 450 kinds of rare diseases recognised in India were identified because patients reported them. The government has not issued an official list of identified rare diseases.
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Only 450 of the 8,000 known rare diseases in the world are recognised in India, an anomaly that underscores a mounting health crisis in which many patients go without being diagnosed accurately or treated on time, say experts while stressing the urgent need for a comprehensive policy.
Rare diseases, including genetic disorders such as Hunter syndrome, Gaucher disease and Fabry s disease, are expensive to treat, difficult to identify, and extract a huge toll, mostly on the young, the experts said ahead of Rare Disease Day on Sunday. ....

West Bengal , Prasanna Shirol , Dipanjana Datta , Ashok Gupta , Chandigarh Post Graduate Institute Of Medical Education , Organisation Of Rare Diseases , Jaipur Sawai Man Singh Medical College , Institute Of Child Health , National Policy For Treatment Of Rare Diseases , Delhi All India Institute Of Medical Sciences , Rare Disease Day , Rare Diseases , Child Health , All India Institute , Medical Sciences , Post Graduate Institute , Medical Education , National Policy , Sawai Man Singh Medical College , Rare Disease India , மேற்கு பெங்கல் , பிரசன்னா ஷிரோல் , அசோக் குப்தா , சண்டிகர் போஸ்ட் பட்டதாரி நிறுவனம் ஆஃப் மருத்துவ கல்வி , ஆர்கநைஸேஶந் ஆஃப் ரேர் நோய்கள் , ஜெய்ப்பூர் சாவை மனிதன் சிங் மருத்துவ கல்லூரி ,