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Sam Berns: The Progeria Research Foundation Sam Berns: The Progeria Research Foundation 416 Words2 Pages The Progeria Research Foundation was founded by Dr. Leslie gordon and Dr. Scott Berns who found out their son Sam Berns was diagnosed with Progeria just shy of his second birthday. It was then when these two doctors who never heard of the disease either, were informed and started doing research on behalf of their son, Sam. They quickly found out that the condition was so rare there was no where for the victims to go, no medical help, no place for parents of the children to console and no source of funding for researchers who were trying to research Progeria. This lack of information that had desperately became reality for this doctoral family became the fuel behind their inspiration to change the lack of funding, support and awareness. National ....