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National Walk to End Epilepsy: Stamford, May 16

Written by Mike Finley
Stamford, CT - Fairfield County residents will be out in force on Sunday, May 16, 2021, as they show their support for epilepsy awareness and the Epilepsy Foundation of Connecticut (EFCT) by participating in the National Walk to End Epilepsy, which will be held at Cove Island Park.
“We are very excited to once again hold our Walk to End Epilepsy events again in-person across the state. We are looking forward to welcoming our tremendous epilepsy community to our walks that help the Epilepsy Foundation of Connecticut provide vital programs, services, and advocacy for the 36,000 individuals living with epilepsy in Connecticut. Despite the pandemic, seizures haven’t stopped…and neither has the fight to End Epilepsy, said Linda Wallace, Executive Director. ....

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National Walk to End Epilepsy Comes to Stamford

National Walk to End Epilepsy Comes to Stamford
Written by Mike Finley
The Annual National Walk to End Epilepsy comes to Stamford on Sunday, May 16th
Fairfield County residents will be out in force on Sunday, May 16, 2021, as they show their support for epilepsy awareness and the Epilepsy Foundation of Connecticut (EFCT) by participating in the National Walk to End Epilepsy, which will be held at Cove Island Park.
“We are very excited to once again hold our Walk to End Epilepsy events again in-person across the state. We are looking forward to welcoming our tremendous epilepsy community to our walks that help the Epilepsy Foundation of Connecticut provide vital programs, services, and advocacy for the 36,000 individuals living with epilepsy in Connecticut. Despite the pandemic, seizures haven’t stopped…and neither has the fight to End Epilepsy”, said Linda Wallace, Executive Director. ....

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Pandemic could hurt home-based care for kids with 24/7 needs

Midway through a conversation about her 14-year-old, Claire, Jamie Davis Smith felt the need to change direction for a moment, to highlight the happiness her daughter can experience. ....

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Pandemic Could Hurt Home-Based Care for Kids With 247 Needs | The Pew Charitable Trusts

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Pandemic Could Hurt Home-Based Care for Kids With 24/7 Needs
Jamie Davis Smith is pictured with her daughter Claire, now 14. Claire has a rare chromosomal abnormality that has left her with a variety of disabling conditions including epilepsy, chronic lung disease, asthma and autism. She benefits from a Medicaid provided service that allows her family to care for her in their Washington, D.C., home, but she would be waitlisted for a similar program if the family moved to Maryland to benefit from better special education programs for their other children.
Jamie Davis Smith
The story has been updated to correct the first name of Jessica Schubel, a senior policy analyst at the Center on Budget and Policy Priorities. ....

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