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Mum lives with a 'hole in her life' after her son's death


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In March, Louise Jessop and her family celebrated her eldest son s 18th birthday, a milestone he never reached.
At two and half years old, Dylan Jessop was diagnosed with Sanfilippo Syndrome, a condition which affects the brain and is one of a group of conditions sometimes known as childhood dementia.
Dylan sadly passed away in July 2015 at just 12 years old.
You never get over it, Mrs Jessop said.
We just had in March what would have been his 18th birthday.
Mrs Jessop is speaking about her loss to raise awareness for her son s condition.
She said it was emotional to pass the milestones that Dylan had missed out on. ....

New South Wales , Sunshine Coast , Alice Springs , Northern Territory , Dylan Jessop , Patrick Woods , Louise Jessop , Currimundi Special School , Sunshine Coast University Hospital , Sanfilippo Children Foundation , Sanfilippo Syndrome , Currimundi Special , Sanfilippo Children , Mrs Jessop , புதியது தெற்கு வேல்ஸ் , சூரிய ஒளி கடற்கரை , ஆலிஸ் நீரூற்றுகள் , வடக்கு பிரதேசம் , டிலான் ஜெஸொப் , பேட்ரிக் வூட்ஸ் , கரிமுண்டி சிறப்பு பள்ளி , சூரிய ஒளி கடற்கரை பல்கலைக்கழகம் மருத்துவமனை , சான்ஃபிலிப்போ குழந்தைகள் அடித்தளம் , சான்ஃபிலிப்போ நோய்க்குறி , சான்ஃபிலிப்போ குழந்தைகள் , திருமதி ஜெஸொப் ,

Mum lives with a 'hole in her life' after her son's death


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Subscriber only
In March, Louise Jessop and her family celebrated her eldest son s 18th birthday, a milestone he never reached.
At two and half years old, Dylan Jessop was diagnosed with Sanfilippo Syndrome, a condition which affects the brain and is one of a group of conditions sometimes known as childhood dementia.
Dylan sadly passed away in July 2015 at just 12 years old.
You never get over it, Mrs Jessop said.
We just had in March what would have been his 18th birthday.
Mrs Jessop is speaking about her loss to raise awareness for her son s condition.
She said it was emotional to pass the milestones that Dylan had missed out on. ....

New South Wales , Sunshine Coast , Alice Springs , Northern Territory , Dylan Jessop , Patrick Woods , Louise Jessop , Currimundi Special School , Sunshine Coast University Hospital , Sanfilippo Children Foundation , Sanfilippo Syndrome , Currimundi Special , Sanfilippo Children , Mrs Jessop , புதியது தெற்கு வேல்ஸ் , சூரிய ஒளி கடற்கரை , ஆலிஸ் நீரூற்றுகள் , வடக்கு பிரதேசம் , டிலான் ஜெஸொப் , பேட்ரிக் வூட்ஸ் , கரிமுண்டி சிறப்பு பள்ளி , சூரிய ஒளி கடற்கரை பல்கலைக்கழகம் மருத்துவமனை , சான்ஃபிலிப்போ குழந்தைகள் அடித்தளம் , சான்ஃபிலிப்போ நோய்க்குறி , சான்ஃபிலிப்போ குழந்தைகள் , திருமதி ஜெஸொப் ,

Indie's 'miracle' recovery in time for 9th birthday


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Indie Fitzgerald is turning 9 this week, a birthday doctors feared she would not make.
Proud godmother and close family friend Sue Wynn said she wanted to make Indie s birthday spectacular and has called on the Coast to help.
Indie has a rare disease called infantile neuroaxonal dystrophy, which is terminal and affects brain and motor function, sight and hearing.
Heartbreakingly, the disease robbed her of the ability to walk and talk by the time she was 4-years-old.
Proud godmother Sue Wynn said Indie was the “toughest” person she’s ever met.
Just weeks ago, Indie was in a hospital intensive care unit with her mum Bec Lawford and dad, Dean Fitzgerald, being told to prepare for the worst. ....

Moffat Beach , Sunshine Coast , Currimundi Special School , Sunshine Grazing Co , Indie Fitzgerald , Sue Wynn , Bec Lawford , Dean Fitzgerald , Hummingbird House , Sunny Coast , Sensory Space , Fight Against , Birthday Celebration , Editors Picks , Terminal Illness , மாஃபேட் கடற்கரை , சூரிய ஒளி கடற்கரை , கரிமுண்டி சிறப்பு பள்ளி , சூரிய ஒளி மேய்ச்சல் இணை , இஂடீ ஃபிட்ஸ்‌ஜெரல்ட் , வழக்கு விந் , டீன் ஃபிட்ஸ்‌ஜெரல்ட் , ஹம்மிங் பறவை வீடு , சூரியன் தீண்டும் கடற்கரை , உணர்ச்சி இடம் , சண்டை எதிராக ,

Indie's 'miracle' recovery in time for 9th birthday | Fraser Coast Chronicle


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Indie Fitzgerald is turning 9 this week, a birthday doctors feared she would not make.
Proud godmother and close family friend Sue Wynn said she wanted to make Indie s birthday spectacular and has called on the Coast to help.
Indie has a rare disease called infantile neuroaxonal dystrophy, which is terminal and affects brain and motor function, sight and hearing.
Heartbreakingly, the disease robbed her of the ability to walk and talk by the time she was 4-years-old.
Proud godmother Sue Wynn said Indie was the “toughest” person she’s ever met.
Just weeks ago, Indie was in a hospital intensive care unit with her mum Bec Lawford and dad, Dean Fitzgerald, being told to prepare for the worst. ....

Moffat Beach , Sunshine Coast , Currimundi Special School , Sunshine Grazing Co , Indie Fitzgerald , Sue Wynn , Bec Lawford , Dean Fitzgerald , Hummingbird House , Sunny Coast , Sensory Space , Fight Against , Birthday Celebration , Editors Picks , Terminal Illness , மாஃபேட் கடற்கரை , சூரிய ஒளி கடற்கரை , கரிமுண்டி சிறப்பு பள்ளி , சூரிய ஒளி மேய்ச்சல் இணை , இஂடீ ஃபிட்ஸ்‌ஜெரல்ட் , வழக்கு விந் , டீன் ஃபிட்ஸ்‌ஜெரல்ட் , ஹம்மிங் பறவை வீடு , சூரியன் தீண்டும் கடற்கரை , உணர்ச்சி இடம் , சண்டை எதிராக ,