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In January this year, the Delhi High Court directed the Union Government to finalise and operationalise the new National Health Policy for Rare Diseases by 31 March 2021. However, this year’s budget made no new allocation for such a plan. Rare diseases, as the name suggests, are health conditions that have a very low prevalence. At first glance, it might seem to be a marginal issue which affects a handful of people, but there are more than 7,000 diagnosed rare diseases in the world and over 350 million individuals suffer from them, with nearly one-fifth in India. Despite the fact that globally, the total number of people with rare diseases surpasses the population of the United States, efforts to properly diagnose and treat these conditions have been lagging. The small pool of patients has remained an impediment for drug and treatment development. The term “orphan diseases” is often used for these as less than five percent of rare diseases have treatment therapies availa ....
Pharmadrug Inc.: PharmaDrug Files For FDA Orphan Drug Designation For DMT In Kidney Transplantation and Expands on Its Psychedelics Strategy PharmaDrug or the Company ), a specialty pharmaceutical company focused on the research, development and commercialization of controlled-substances and natural medicines such as psychedelics, cannabis and naturally-derived approved drugs, is pleased to announce it has expanded its psychedelic pharmaceutical program with the filing of an application with the U.S. Food and Drug Administration ( FDA ) to receive Orphan Drug Designation ( ODD ) for N,N-Dimethyltryptamine ( DMT ) in the prevention of ischemia reperfusion injury in patients undergoing kidney transplantation. Pharmaceutical Psychedelics Strategy Following the acquisition of Sairiyo Therapeutics and its biotech R&D core competencies, PharmaDrug has undertaken efforts to expand its research activities in the pharmaceutical psychedelics space. The Company s psychedel ....
European Commission Grants Ocugen Orphan Medicinal Product Designation for Gene Therapy Product Candidate, OCU400, For the Treatment of Both Retinitis Pigmentosa and Leber Congenital Amaurosis NR2E3), for the treatment of both retinitis pigmentosa (RP) and Leber Congenital amaurosis (LCA). The prevalence of RP in Europe is estimated at approximately 165,000 patients and the prevalence of LCA in Europe is estimated at approximately 40,000 patients. Globally, the number of people suffering from RP and LCA is estimated to be around 2.0 million and 0.2 million, respectively. We believe the granting of this designation by the European Commission validates the potential of our modifier gene therapy platform to treat many inherited retinal diseases, Chairman of the Board, Chief Executive Officer, and Co-founder of Ocugen. ....
Orphan appeals to IGP for justice Peshawar February 11, 2021 LAKKI MARWAT: An orphaned youth on Wednesday appealed to the Inspector General Police (IGP) Sanaullah Abbasi to take note of his torture by a cop in the police station. Ali Marjan, resident of Lakki City, said that he along with his two brothers had been running a business of iron works for a long time. He said that an investigation cop, Muhammad Ismail, caught him last week and took him to the police station where he along with other policemen tortured him. He said that his two brothers were also arrested and tortured in the police station, adding that one of his brothers was admitted at the City Hospital Lakki due to his precarious condition later on. ....