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20 million people 'are living with sickle cell'


By
Wed Jun 23 2021
A group known as Concerned Medics Foundation says an estimated 20 million people are living with Sickle Cell disease across the world.
The World Sickle Cell Awareness Day was celebrated on Saturday 19th June 2021.
In a statement to mark the day, Dr Sadiya Gumi, Convener of the group, said general lack of awareness, poverty, lack of funding and insufficient number of trained staff make sickle cell disease a major burden on the whole of society.
“It is observed annually with the goal of increasing public knowledge and understanding of sickle cell disease and the challenges experienced by patients, their families, and caregivers.” ....

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Riley Hospital treats sickle cell patients' minds with book club


Riley Hospital treats sickle cell patients minds with book club
The hospital has given out over 100 books to children living with sickle cell disease as part of the Sickle Cell Story Book Club.
Author: Sarah Jones
Updated: 7:32 AM EDT June 18, 2021
INDIANAPOLIS A new book club at Riley Hospital for Children at IU Health is bringing together families dealing with a rare disease.
The hospital has given out over 100 books to children living with sickle cell disease as part of the Sickle Cell Story Book Club.
While the disease has been known for over 100 years, doctors specialized in treating sickle cell say it is underfunded because it is rare and affects the minority population. Screening for the disease in newborns is mandatory in every U.S. state, plus the District of Columbia, according to the American Academy of Family Physicians Foundation. ....

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