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TN-RDAC To Inform TennCARE On Pharmaceutical Treatments

TN-RDAC To Inform TennCARE On Pharmaceutical Treatments
Wednesday, May 12, 2021
The newly formed Tennessee Rare Disease Advisory Council or TN-RDAC (pronounced AHR-dak) has set its priorities to advocate for Tennesseans diagnosed with rare diseases, including advising TennCare’s Pharmacy Advisory Committee and Drug Utilization Review Committee on pharmaceutical treatments, as well as identifying the overall impact of rare diseases on Tennesseans.

Created by public charter in the 111th Tennessee General Assembly, TN-RDAC elected at its inaugural meeting its Chairman Dr.
Scott Strome, executive dean of the University of Tennessee College of Medicine and vice chancellor for clinical affairs at UT Health Science Center. Dr. Strome brings rare disease research and clinical experience to the TN-RDAC. ....

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Gap in care, research and funding for rare blood disorder disproportionately affecting Black Americans

Gap in care, research and funding for rare blood disorder disproportionately affecting Black Americans
Gap in care, research and funding for sickle cell disease
By Kelli Cook | May 7, 2021 at 10:29 PM CDT - Updated May 7 at 10:29 PM
MEMPHIS, Tenn. (WMC) - About 3,000 people in Shelby County are living with sickle cell disease, about 100,000 across the country.
It’s a rare blood disorder that has disproportionately affected African-Americans for more than a century.
However the gap for care, research and funding is staggering compared to other rare disorders.
Telly Dodson says he knows that all too well.
It’s the simplest of things that could turn into a life-or-death situation for Dodson like working in his yard or playing in the snow. ....

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