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'You know nothing other than it is either success or failure.' Parents of kids with cancer plead for research as kids fight rare cancers with treatments intended for adults.


‘You know nothing other than it is either success or failure.’ Parents of kids with cancer plead for research as kids fight rare cancers with treatments intended for adults.
Alison Bowen, Chicago Tribune
© Abel Uribe/Chicago Tribune
Scott and Pammy Kramer show a picture of their daughter Maddie while sitting with their younger daughter Lily, 4, at their Lakeview home on May 5, 2021.
When their toddler daughter Maddie was diagnosed with cancer in 2017, Scott and Pammy Kramer felt her care was in good hands.
They had a wonderful Chicago doctor who talked them through a path forward. But Maddie’s treatment plan was based on scant data, as her rare childhood cancer could not lean on research and data more typically available for adult cancers. And most medications for her little body, her parents recalled, were designed for adults. ....

United States , Aubrey Reichard , Scott Kramer , Joe Biden , National Pediatric Cancer Foundation , American Childhood Cancer Organization , National Institutes Of Health , Pammy Kramer , Chicago Tribune Scott , President Joe Biden , Aubrey Reichard Eline , American Childhood Cancer , National Institutes , Dancing While Cancering , ஒன்றுபட்டது மாநிலங்களில் , ஆப்ரி ரீச்சார்ட் , ஸ்காட் கிராமர் , ஓஹோ பிடென் , தேசிய குழந்தை புற்றுநோய் அடித்தளம் , அமெரிக்கன் குழந்தை பருவம் புற்றுநோய் ஆர்கநைஸேஶந் , தேசிய நிறுவனங்கள் ஆஃப் ஆரோக்கியம் , பம்மி கிராமர் , ப்ரெஸிடெஂட் ஓஹோ பிடென் , அமெரிக்கன் குழந்தை பருவம் புற்றுநோய் , தேசிய நிறுவனங்கள் ,

Child cancer patients face diseases with treatments intended for adults