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Urbana family hopes to bring awareness to rare diseases with their story

URBANA, Ill. (WAND) — One local family is sharing their tragic loss to advocate for others. ....

Chris Ostertag , Global Foundation For Peroxisomal Disorders , Global Organization For Peroxisomal Disorders , Peroxisome Biogenesis Disorder , Zellweger Spectrum , Global Foundation , Peroxisomal Disorders , Global Organization , Rare Disease Week , Capitol Hill , Disease Day , Rare Disease Day ,

Cedar Rapids family watching redesign of program for people with disabilities

Cedar Rapids family watching redesign of program for people with disabilities
kcrg.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from kcrg.com Daily Mail and Mail on Sunday newspapers.

Cedar Rapids , United States , Natalie Clouse , Elizabeth Matney , Iowa Department Of Health , Human Services , Services Waiver Program , Iowa Department , Community Based Services Waiver , Zellweger Spectrum , Iowa Medicaid , Medicaid Town Hall ,

Remembering Hans: A family's journey raises awareness for rare diseases on Global Peroxisome Biogenesis Disorders Day

October 5th is Global Awareness Day for Peroxisome Biogenesis Disorders, a group of rare and terminal diseases. We one family’s story and how they now advocate ....

South Korea , United States , Hans Ostertag , Jaya Wadhawan , Chris Ostertag , Rachel Ostertag , Global Awareness Day , Peroxisome Biogenesis Disorders , Peroxisome Biogenesis Disorder , Zellweger Spectrum , Health Medical Pharma , Rare Disease , Rare Diseases , Peroxisomal Disorders , Infantile Refsum Disease ,