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Finding hope and resilience while spreading awareness

Yiuvany Aguilar’s twin daughters sadly passed away from Alstrom Syndrome, a rare genetic disorder. For this Kern’s Kindness, 23ABC's Kallyn Hobmann spoke with her on how she’s honoring her daughters. ....

Yiuvany Aguilar , Syndrome International , Madera Children ,

Hope for daughter with rare disease, mother stays positive for daughter in hospice care

Hope for daughter with rare disease, mother stays positive for daughter in hospice care
âEvery day I am grateful for one little day with my daughter. It means a lot. My life now is day by day. It is not what I will do in two months or six months. I donât care what is going to happen. It is just day by day, minute by minute. I just want to be with her.â
One Bakersfield family is currently going through the unimaginable. Their 6-year-old daughter is now in hospice care due to a rare disease called Alstrom Syndrome, which causes a wide variety of health issues. ....

Bayne Froney , Yiuvany Aguilar , One Bakersfield , Bakersfield News , Bakersfield Traffic , Bakersfield Weather , Kern County , Kern County News , Kern County Traffic , Kern County Weather , Latest News , ஒன்று பேக்கர்ஸ்ஃபீல்ட் , பேக்கர்ஸ்ஃபீல்ட் செய்தி , பேக்கர்ஸ்ஃபீல்ட் போக்குவரத்து , பேக்கர்ஸ்ஃபீல்ட் வானிலை , கர்ன் கவுண்டி , கர்ன் கவுண்டி செய்தி , கர்ன் கவுண்டி போக்குவரத்து , கர்ன் கவுண்டி வானிலை , சமீபத்தியது செய்தி ,