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Former attorney works to bring resources to those with rare genetic disease

Mark Christman had people around him, but he still felt lonely. “When you have a rare disease, it makes you feel alone,” said Christman, who was diagnosed in 1977 with facioscapulohumeral muscular dystrophy, or FSHD, a genetic disorder that causes weakening of the skeletal muscles. “I had never met another

MALI : General Yamoussa Camara, the Mali junta s éminence grise

Yamoussa Camara has in less than a year become one of the most influential figures in Mali s Koulouba presidential palace. Junta leader Assimi Goïta made him his permanent secretary last year, and he

FSHD Society Western Pa chapter gets ready to Drum & Roll

Members of the FSHD Society Western Pennsylvania chapter are getting ready to rock ‘n roll for the second annual Drum & Roll to Cure FSHD event. Set for 1 to 3 p.m. Nov. 5 at the Andrew Carnegie Free Library and Music Hall in Carnegie, the event will feature African

Bamada net - Yamoussa Camara nommé SP-CSN : Un officier d expérience à la tête d une structure stratégique !

Bamada net - Yamoussa Camara nommé SP-CSN : Un officier d expérience à la tête d une structure stratégique !
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