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Together towards tomorrow: Unlocking the potential of gene therapies

Together towards tomorrow: Unlocking the potential of gene therapies
hsj.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from hsj.co.uk Daily Mail and Mail on Sunday newspapers.

United kingdomDepartment of healthHealth affairsNational institute of healthUnited kingdom bioindustry associationNational instituteCare excellenceEngland rare diseases action planRare diseasesUnited kingdom rare disease frameworkKingdom bioindustry

Kyowa Kirin Responds to NICE s Publication of Appraisal Consultation Document for CRYSVITA (Burosumab), for Treatment of Rare Disease X-Linked Hypophosphataemia (XLH) in Adults1

Kyowa Kirin Responds to NICE s Publication of Appraisal Consultation Document for CRYSVITA (Burosumab), for Treatment of Rare Disease X-Linked Hypophosphataemia (XLH) in Adults1
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United statesUnited kingdomGavin clunieAsia pacificGemeinsamer bundesausschussOliver gardinerStefan klotterEmma claeysUltragenyx pharmaceutical incTeam managementTransparency committee summaryKyowa kirin internationalAmendment of the pharmaceuticals directiveInternational kyowa kirinNational insituteStandard technology assessment

Kyowa Kirin Responds to NICE s Publication of Appraisal Consultation Document for CRYSVITA® (Burosumab), for Treatment of Rare Disease X-Linked Hypophosphataemia (XLH) in Adults¹

Kyowa Kirin Responds to NICE s Publication of Appraisal Consultation Document for CRYSVITA® (Burosumab), for Treatment of Rare Disease X-Linked Hypophosphataemia (XLH) in Adults¹
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United kingdomUnited statesOliver gardinerGavin clunieGemeinsamer bundesausschussAsia pacificEmma claeysTransparency committee summaryKyowa kirin internationalKyowa kirin announces european commission ec approvalNational institute for healthSingle technology appraisalContact for kyowa kirin co ltdUltragenyx pharmaceutical incStandard technology assessmentHealth care transition from

Rare diseases plan commits to new nursing strategy for England

The government has launched an action plan which is set to increase nurse awareness of rare diseases.

United kingdomHelen whatelyLucy chappellDepartment of healthHealth education englandSocial careEngland rare diseases action planRare diseaseUnited kingdom rare disease frameworkEducation englandRare diseases action planProfessor lucy chappell

England Rare Diseases Action Plan to tackle health inequalities

The 2023 England Rare Diseases Action Plan goes further than ever before to support people living with rare diseases.

United kingdomPhilippa farrantHelen whatelyKerry leeson beeversEllen thomasLucy chappellStephen powisNational genomic research libraryBiomedical research centresGenetic alliance united kingdomBiomedical research centres brcsEngland rare disease framework delivery groupNational institute for healthInnovative medicines fundGenomic medicine serviceCare research