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MP seeks govt help for kids suffering from spinal muscular atrophy By IANS | Published on Wed, Mar 17 2021 12:42 IST | 4 Views spinal cord.. Image Source: IANS News New Delhi, March 17 : Congress MP Vivek Tankha during zero hour in the Rajya Sabha on Wednesday raised the issue of children suffering from spinal muscular atrophy. The Congress MP raised the matter and demanded the government to take up theissue with the drug manufacturing company so that the drug becomes cheaper. He also demanded that the medicine should be provided to all those children who are suffering from this genetic disease. The company Novartis manufactures the drug named Zolgensma for gene therapy to treat spinal muscular atrophy. Zolgensma is the most expensive medicine in the world and it costs 2.1 million US dollars, about Rs 15.24 crore in Indian currency. One injection is enough to correct the genetic defect. ....