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Determination, patience and hard work behind development of Juliana Village at Miranda | St George & Sutherland Shire Leader

Determination, patience and hard work behind development of Juliana Village at Miranda | St George & Sutherland Shire Leader
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Gene silencing medicine transforms crippling pain

The NHS is set to fund innovative therapy that patients say has given them their lives back. ....

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Sue Burrell helping through British Porphyria Association

The charity advocate did everything she could to protect herself from the condition including avoiding alcohol, certain medications and keeping healthy.
Mrs Burrell, who has a four-year-old daughter, added: Four days after the sickness bug in the office I had really bad back pain. I felt more drained than usual. I spoke to my sister and she said it sounded like AIP. I went into denial because I knew how horrendous it was.
Sue Burrell (right) with her husband Ian and four-year-old daughter Abi.
- Credit: Sue Burrell
After a series of tests and going to hospital, she said: The doctors did not know what to do. They had not come across another porphyria patient before. My sister travelled to be with me and became my advocate. ....

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