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Nebraska currently tests for 35 primary conditions and 31 secondary conditions. The federal government’s Recommended Uniform Screening Panel has 37 on the list. 10/11′s national investigative team found no state in the country tests for all 37. ....
The state where a baby is born determines what serious and rare disorders he or she will be screened for shortly after birth. It’s a patchwork of policies across the country that could have dire consequences. Some parents call it death by ZIP code. ....
After Cloud’s diagnosis of Krabbe A disease, the Kirbo family decided to do what they could to ensure that no other families in Georgia had to wait as long as they did for answers. ....
The state where a baby is born determines what serious and rare disorders he or she will be screened for shortly after birth. It’s a patchwork of policies across the country that could have dire consequences. Some parents call it death by ZIP code. ....