Patients with Rare Diseases. Advocates for medical ethics and a therapeutic industry professionals also testified to provide insight on the fda Clinical Trial process. This hearing before the Senate Special Agent Committee is about two hours. [background noises] [background noises] good morning the Senate Special committee will come to order welcome everybody. Welcome to the committees eighth hearing of the one her 18th congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member brought in this case will offer an opening statement. Thank you, senator. Thank the witnesses for coming and for all of the folks from around the country here today. There are over 7000 rare progressive and serious diseases known to man. It is estimated 95 black treatment. Yet in my time et cetera there is not been one Senate Hearing to examine promising therapies for people with rare progressive and serious diseases. Th
About how the authorities in the independent system of the country are preparing for the inevitable frosts, representatives of the western Editorial Office even visited one of the ukrainian power plants to be horrified by the exhausted engineer and the thirtyyearold transformer, thanks to which the operation of all the equipment is maintained; as stated, the key components of the station are surrounded by bastions with sand , however , in the event of a direct hit, it will still be instantly disabled. Besides, it turned out that there was simply no one to do the repairs. 5,000 employees of the National Energy company were taken into the armed forces of ukraine, and now even women are forced to work in coal mines, which has never happened before. At the same time, this year the kiev regime intends to very creatively protect Energy Equipment from possible attacks. According to the same economist , transformers will simply be stored outside of ukraine. Lets figure out how reliable such a
Highprecision aerial bomb hit the bunker where the headquarters of the Ukrainian Armed forces was located; 50 militants and officers were eliminated. Lets assume that augusts initiative is supported, multibrad. Conversation as equals. The world is moving away from the financial dictatorship of the west. What initiative of students from brazil was supported by the president of russia and what he spoke about with the students of the sirius lyceum. For the first time, american congressmen have deprived themselves of a speaker. Republican Kevin Mccarthy is suspected of colluding with biden; money for ukraine in the budget may hang around for a long time. Scandals with the nazis continue. The dutch press published a photo of the National Socialist Party Membership card owned by the dutch prince bernerd. Zelsky openly signed the flag of the sss Galicia Division with pleasure. Protests around. Nato bases in germany, why did defense minister pistorius lose his temper when asked that the confli
To rhonda and sport arsenal and go 3 points clear at the top of the premier league in some dramatic style. A record breaking victory against chelsea as they put 5 high stairs london rivals to make the 5th titles plus the is arouse war on guns, a is. And its 200 today with no sign of an into the unrelenting attacks carried out by as rarely forces most half the strips population as in bravo. We is ready for us as a threatening to launch a catastrophic offensive least 34183. 00 palestinians had been killed since october. The 7th. Thats how i can boys in has this report from rafa and Southern Gaza the 200 days since as well began to genocide of cause lights on slate, shows new signs of lifting up. And again, its women and children who all the victims. Spite was just 7 years old when the messiah struck. Is mobile, now left without this on the be . We were inside the house and suddenly the house breaks, gassett everywhere. We kept looking for a smile, but he wasnt in the house and he was in
To a proper context. Some of you may know already, but we are a private, nonprofit organization. The mission of the place is to enhance the understanding of the appreciation of the executive mansion. One time, in 1961, during the kennedy administration, the first lady, Jackie Kennedy founded the administration to help the white house collect and exhibit the absolute best of American History and culture. Underscoring all of that, to inform and incite the public about the history of the mansion. Today, we are still doing this or it, reservation, Research Continues through the sale of our books, our products. Official white house ornament, which some of you may know as well. Privatet years, from and corporate donations. To strengthen our goal, the over arching goal, which is to widely share white house history with the public, last year we created to bringure service wellknown authors and historians to the association to share their knowledge and insight with the public. And to humanize t