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Every year thousands of children are born with serious yet unexplained health issues. With no diagnosis, they struggle to get medical treatment or much-needed support ....
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Pharmaceutical Market Europe - March 2021 Marking Rare Disease Day Rare Disease Day 2021, that fell on 28 February this year, aims to raise awareness among the general public and decision-makers about rare diseases and the impact these conditions have on patients’ lives. According to Rare Disease UK, one in 17 people will be affected by a rare disease at some point during their lifetime, with 3.5 million people in the UK and 30 million people across Europe living with a rare disease. In 2021, Rare Disease Day focused on the global rare diseases community by spotlighting six continents, six portraits, six heroes, six lives, featuring individuals living with a different rare disease and facing similar challenges. ....