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Rare Disease Day: Sleeping can be life-threatening for these newborns with CCHS

Life-long ventilator support the only option for kids with Congenital Central Hypoventilation Syndrome ....

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Refocusing on Rare Diseases

Refocusing on Rare Diseases
biospectrumindia.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from biospectrumindia.com Daily Mail and Mail on Sunday newspapers.

Nabendu Chatterjee , Rakesh Mishra , Karthik Bharadwaj , Jogin Desai , Ashwin Dalal , Dravet Lennox Gastaut , Drug Administration , Institute Of Cholera , National Consortium For Research , Eyestem Research , National Apex Committee , National Policy For Rare Diseases , Tata Institute For Genetics , Union Health Ministry , Csir Centre For Cellular Molecular Biology , National Research Foundation , Diagnostics Division , Research Innovation For Genetic Diseases , Sickle Cell Disease , Chief Executive Office , Molecular Biology , Genome Mapping , Orphan Drug Act , Intellectual Property , Rare Disease Policy , National Policy ,

We are many: Advocating for patients with rare diseases

We are many: Advocating for patients with rare diseases
georgeherald.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from georgeherald.com Daily Mail and Mail on Sunday newspapers.

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Rare disease patients looking in from the outside: Department of Health needs to do better

Rare disease patients looking in from the outside: Department of Health needs to do better
iol.co.za - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from iol.co.za Daily Mail and Mail on Sunday newspapers.

South Africa , South Africans , Monique Nel , Rare Humanitarian Programme , National Treasury , Rare Diseases , Rare Disease Policy , Rare Disease ,

OKU Sentral urges Health Ministry to set up rare disease policy

KUALA LUMPUR: OKU Sentral president Senator Datuk Ras Adiba Radzi has called on the Health Ministry to establish a Rare Disease Policy to safeguard the welfare of those suffering from rare illnesses. ....

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