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Europe's rare diseases postcode lottery creating health inequality

Europe's rare diseases postcode lottery creating health inequality
euractiv.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from euractiv.com Daily Mail and Mail on Sunday newspapers.

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'My son is not there anymore': How young people with psychosis are falling through the cracks

The earlier a person’s symptoms are treated, the better the outcome – but many people with psychosis or schizophrenia struggle to get access to care. ....

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Establishment of National Rare Disease Steering Group

Establishment of National Rare Disease Steering Group
anglocelt.ie - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from anglocelt.ie Daily Mail and Mail on Sunday newspapers.

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Poland to allocate EUR 154.8 million for Rare Diseases Plan

News & Politics
March 01, 2021
According to the health minister around 6-8 percent of the population, or at least two to three million people in Poland, have rare diseases.
Tomasz Gzell/PAP
Poland will spend over PLN 700 million (EUR 154.8 million) in 2021-2023 to cure rare diseases as a part of the Rare Disease Plan, the health minister has announced on Monday.
Currently, the Plan defines 40 specific tasks and deadlines for their implementation, worth over PLN 90 million (EUR 19.8 million).
These are not all costs, because in the case of rare diseases, advanced drug therapies are of a great importance, and we will use the Medical Fund in this area,” Adam Niedzielski said at the press conference. ....

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