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Rare Disease Congressional Caucus to Host Virtual Briefing: Economic Burden of Rare Diseases in America on Feb. 25, 2021


Annie Kennedy, EveryLife Foundation for Rare Diseases
Elisabeth Oehrlein, National Health Council
Marissa Penrod, Founder and CEO, Team Joseph, mother of a young man with Duchenne
Esther Krofah, Milken Institute, Faster Cures (moderator)
About the Rare Disease Congressional Caucus
The Rare Disease Congressional Caucus, a bipartisan, bicameral caucus, provides a platform to educate and engage Members of Congress on policy issues impacting the rare disease community and gives rare disease patients a voice on Capitol Hill. The caucus is led by the co-chairs, Representatives G.K. Butterfield (NC) and Gus Bilirakis (FL) and Senators Roger Wicker (MS) and Amy Klobuchar (MN). ....

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