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Annie Kennedy, EveryLife Foundation for Rare Diseases Elisabeth Oehrlein, National Health Council Marissa Penrod, Founder and CEO, Team Joseph, mother of a young man with Duchenne Esther Krofah, Milken Institute, Faster Cures (moderator) About the Rare Disease Congressional Caucus The Rare Disease Congressional Caucus, a bipartisan, bicameral caucus, provides a platform to educate and engage Members of Congress on policy issues impacting the rare disease community and gives rare disease patients a voice on Capitol Hill. The caucus is led by the co-chairs, Representatives G.K. Butterfield (NC) and Gus Bilirakis (FL) and Senators Roger Wicker (MS) and Amy Klobuchar (MN). ....