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Greater understanding and awareness of rare, genetic diseases stressed in UAE


In an exclusive interview with
Gulf News, Dr Maryam Mohammad Al Matar, founder and chairperson of the UAE Genetic Diseases Association, answered a range of questions of rare diseases and how to identify them:
What is a rare disease?
A rare disease is a health condition that affects a small number of people compared with other prevalent diseases in the general population. To date, 8,000 distinct rare diseases have been documented, of which 80 per cent have a genetic component. Approximately 75 per cent of the population affected by rare diseases are children, 30 per cent of whom die before the age of five. ....

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