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| A-T Walk for a Cure raises $90,000Fort Macleod Gazette

Southern Alberta came together to help a Fort Macleod family raise more than $90,000 for research into a cure or treatment for a rare genetic disease. The Van Hierden family’s . ....

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Inspired by Alex: Southern Alberta mom runs marathon to raise money for rare disease

FORT MACLEOD, ALTA.
Crystal Olive ran 42 kilometers from Fort Macleod to Claresholm Thursday as part of an event to raise awareness and funds for the A-T Children’s Project, an organization dedicated to finding a cure for a rare disease called ataxia telangiectasia.
Crystal’s son Alex, who turned 11 in March, was diagnosed with A-T when he was around two years old.
A-T is a progressive and degenerative disease that attacks children, affecting coordination, causing immune deficiencies and leading to high rates of cancer.
The same disease led to the death of a second cousin, Randy Van Hierden in 2004, at the age of 20. Randy’s parents Conrad and Rhonda Van Hierden began organizing an annual walk for A-T research in 1998, and the family continues to work tirelessly to increase awareness and raise money for the cause. ....

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