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Delhi HC forms expert panel to discuss treatment, therapy for rare diseases patients


Delhi HC forms expert panel to discuss treatment, therapy for rare diseases patients
Delhi High Court has constituted an expert committee to find solutions for providing treatment and therapy options to patients with rare diseases.
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The
Delhi High Court has constituted an expert committee to assess and find solutions on various aspects, including how to
immediately provide treatment and therapy options to patients suffering from rare diseases including Duchenne Muscular Dystrophy (DMD) and Hunter s syndromes.
The high court said the committee shall also discuss steps to be taken to indigenise the development of the therapies in India and reasonable timelines required to be followed thereof. ....

Justice Prathibam Singh , Pulkesh Singh , Renu Swarup , Dystrophy Annihilation Research , Ministry Of Health , Union Of India , Delhi High Court , Institute Of Child Health , Department Of Biotechnology , Duchenne Muscular Dystrophy , Prathibam Singh , Sarepta Therapeutics , Hunter Syndrome , Sir Ganga Ram Hospital , Chief Scientific Officer , Dystrophy Annihilation Research Trust , Child Health , Deputy Secretary , Family Welfare , Rare Diseases , Health Care Facilities , Rare Disease India , ரேணு சுவருப் , அமைச்சகம் ஆஃப் ஆரோக்கியம் , தொழிற்சங்கம் ஆஃப் இந்தியா , டெல்ஹி உயர் நீதிமன்றம் ,