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Top News In Portia Thorman Today - Breaking & Trending Today

These little girls were born with the same cruel genetic illness... but baby Amelia will never suffer like big sister Maisie - thanks to a miracle £75,000-a-dose jab

Portia Thorman of the Spinal Muscular Atrophy charity SMA, said these new treatments were not available when her son Ezra, pictured left, was born. ....

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Spinal Muscular Atrophy patients in the UK are 'let down' and struggling to access vital treatments

The charity SMA UK believes the lack of treatment access is due to a range of factors; from regional disparities, cultural and economic barriers, and gaps created by the transition from paediatric to adult care. ....

United Kingdom , Channa Hewamadduma , Adele Farquhar , Portia Thorman , For Adele Farquhar , Spinal Muscular Atrophy , Sheffield Teaching Hospital , Sky News ,

Spinal Muscular Atrophy patients in the UK are 'let down' and struggling to access...

For Adele Farquhar, even basic physical activities are a daily struggle. ....

United Kingdom , Channa Hewamadduma , Portia Thorman , Adele Farquhar , Spinal Muscular Atrophy , Sheffield Teaching Hospital , Sky News , Met Office ,

Uncompassionate use: the inconsistent offering of life-saving unlicensed medicines

The Pharmaceutical Journal from the Royal Pharmaceutical Society ....

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