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Bozeman family faces the unthinkable as child battles rare genetic disease

A Bozeman family is facing heartbreak and devastation as their son continues to battle a rare genetic disease. But even so, they’re not losing faith. ....

Mark Blackford , Sherine Blackford , Loving Loic , Genetic Disease , Jolee Sallee , Loic Blackford ,

Montana family faces the unthinkable as child battles rare genetic disease

A Bozeman family is facing heartbreak and devastation as their son continues to battle a rare genetic disease. But even so, they’re not losing faith. ....

Mark Blackford , Sherine Blackford , Loving Loic , Genetic Disease , Jolee Sallee , Loic Blackford ,

Detailed text transcripts for TV channel - CNN - 20190109:05:36:00

Of the food and drug administration is dark right now. some agency employees are speaking to cnn and warning that the low staffing levels could prove deadly. we just learned of the warning a few minutes ago. after we had already planned to talk to a mom who says her son s potentially life-saving drug cannot be approved because the fda division that approves this experimental trial is on furlough. the mother is sara doerr. she joins me now. sara, much of the talk about the shutdown has focused on missed paychecks and the difficulties economically that families are going through. that s certainly incredibly important, but for some people, this can be a matter of life and death. can you just explain the situation your family is in right now? absolutely. that s correct. what we re facing right now is because the fda is one of the government agencies that is closed right now, our son who has a disease called pkan and he s been waiting for a clinical trial, we were told that that trial wou ....

Food And Drug Administration , Sara Murray , Sara Doerr , Matter Of Life And Death , Government Agencies , Clinical Trial ,