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Parents call for nationwide screening for deadly muscle-wasting Spinal Muscular Atrophy


Parents call for nationwide screening for deadly muscle-wasting Spinal Muscular Atrophy
Oakley Gough was diagnosed with Spinal Muscular Atrophy at eight weeks old.
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Oakley Gough is not the first baby to miss out on a newborn health test that could have prolonged her life, but her parents hope she will be the last.
Key points:
Newborns are screened for SMA in NSW and the ACT
Qld parents are campaigning for SMA screening nationwide
Six-month-old Oakley was diagnosed with Spinal Muscular Atrophy (SMA) at eight weeks old when she lost the ability to breast or bottle feed and was fitted with a nasogastric tube. ....

Oakley Gough , Queensland Health , A Queensland Health , Muscular Atrophy , Spinal Muscular Atrophy , Motor Neurone Disease , Grant Gough , New South Wales , New South , Health Minister Yvetted Ath , ஓக்லி கோஃப் , குயின்ஸ்லாந்து ஆரோக்கியம் , தசை அட்ரோஃபீ , முதுகெலும்பு தசை அட்ரோஃபீ , மோட்டார் நியூரோன் நோய் , மானியம் கோஃப் , புதியது தெற்கு வேல்ஸ் , புதியது தெற்கு ,