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'It means the world to us,' Halloween party for kids battling illnesses

Kids were able to break-it-down on the dance floor at the "Halloween Spooktacular" a party hosted for kids battling cancer and other illnesses. ....

Mary Friona Celani , Sweet Buffalo Rocks , Totally Buffalo Cares , Nora Conta , Pitt Hopkins Syndrome , Sto Lat Bar ,

Grand Island family works to spread awareness of rare disorder

When Nora Conta was a 6-month-old baby, she couldn t hold a bottle and she couldn t grab toys. Her hands were closed tight, and she was unable to open them. It was when she was 6 months old that her parents wondered if something was wrong with their daughter. ....

United States , Harvard University , Alice Gerard , National Organization For Rare Disorders , Broad Institute Of Massachusetts Technology , Nora Conta , National Organization , Rare Disorders , Marie Conta , Hopkins Syndrome Awareness Day , Broad Institute , Massachusetts Institute , Boston General Children , Pitt Hopkins Syndrome , Niagara Paper , Iagara County Publication , Erie County , Iagara Wheatfield Tribune , Rand Island Pennysaver , Rand Island Dispatch Lewiston Porter Sentinel ,

A rare condition affecting 500 children in the world; one case is in WNY

Pitt-Hopkins Syndrome is a genetic disorder affecting a child's development. ....

Maia Kozak , Jennifer Vacanti , Hopkins Syndrome , Pitt Hopkins Awareness , Nora Conta , Marie Conta , Pitt Hopkins Awareness Day ,