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Pompe Disease in India | How misdiagnosis, expensive treatment options and poor awareness are affecting patients of this rare disease - News Healthcare

Pompe Disease in India | How misdiagnosis, expensive treatment options and poor awareness are affecting patients of this rare disease - News Healthcare
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Priyas Kishnani , Nidhi Shirol , Prasanna Shirol , Observer Research Foundation , Organization Of Rare Diseases , Organisation For Rare Diseases India , Ministry Of Health , Duke University , Rare Diseases , Medical Genetics , Financial Express , Indian Express , Rare Diseases India , Enzyme Replacement Therapy , India Charitable Access Program , Sanofi Specialty Care , General Manager , Specialty Care , Orphan Drugs , Family Welfare ,

UPSC Essentials | Daily subject-wise quiz — Environment, Geography, Science and Technology (Week 42)

Are you preparing for UPSC CSE Prelims 2024? Check your progress and revise your topics through this quiz on Environment, Geography, Science and Technology. ....

Noa Dihing River , India General , Delhi Cantonment , Sharm El Sheikh , Janub Sina , New Delhi , Andhra Pradesh , United Arab Emirates , Nidhi Shirol , Prasanna Shirol , Vasant Vihar , Rashtriya Raksha University , Northern Command Of The Indian Army , Namdapha National Park , Brane Service , Organisation For Rare Diseases India , Department Of Water Resources , Dynamic Groundwater Resources , Dynamic Ground Water Resources , Glycogen Storage Disease Type , Namdapha Flying Squirrel , Central Ground Water Board , Northern Command , Indian Army , Gandhinagar Based Rashtriya Raksha University , Rare Diseases India ,

UPSC Weekly Current Affairs Quiz | December 03 to December 09, 2023

Brush up your current affairs knowledge for this week and consolidate your UPSC-CSE preparation. Find answers along with explanations at the end of the quiz. ....

United Arab Emirates , France General , Andhra Pradesh , Shah Nawaz , United Kingdom , City Of , Marco Polo , Muhammad Mahabat Khanji , Nizam Mir Usman Ali , Mahatma Gandhi , Giorgia Meloni , Adhir Ranjan , Carlo Formichi , Prasanna Shirol , Nidhi Shirol , Chhatrapati Shivaji Maharaj , Zulfikar Ali Bhutto , Narendra Modi , Franklind Roosevelt , Eleanor Roosevelt , Indian Army , British Indian Army , University Of Rome , Navy Day , Maratha Navy , Commission On Human Rights ,

Families of children with rare diseases in India are abandoned by policymakers and society

All that the government has offered the vast majority of rare disease patients is a crowdfunding platform where they can make a request for donations. ....

United States , Justice Prathibam Singh , Nidhi Shirol , Justice Singh , Sanofi Genzyme , Rashtriya Arogya Nidhi , Prasanna Shirol , Meryl Mammen , Alok Bhattacharya , Andhra Pradesh Chittoor , Shilpi Bhattacharya , Organisation For Rare Diseases India , Drug Administration , Ministry Of Health , Indira Gandhi Institute Of Child Health , Ashoka University , National Policy For Treatment Of Rare Diseases , Delhi High Court , Centre For Excellence , National Policy For Rare Diseases , World Health Organisation , Shirol Organisation For Rare Diseases India , European Union , Intensive Care , Common Ground , Rare Diseases India ,