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These Dads Drove Over 57 Hours, Livestreamed the Cross-Country Trip on YouTube and Raised $156,000 for Their Kids Rare Genetic Disease

These Dads Drove Over 57 Hours, Livestreamed the Cross-Country Trip on YouTube and Raised $156,000 for Their Kids Rare Genetic Disease
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United statesPeter halliburtonKyler himesMike gragliaKevin fryeBrett stelmaszekPortofino hotel marinaSyngap research fundNew yorkRed ball garagePortofino hotelFort worthfor appleBean boozled

These Dads Drove Over 57 Hours, Livestreamed the Cross-Country Trip on YouTube and Raised $156,000 for Their Kids Rare Genetic Disease

These three dads drove from New York to California and raised $156,000 for their sons’ rare genetic disease. Here’s what helped and how the money is being.

United statesPeter halliburtonKyler himesMike gragliaKevin fryeBrett stelmaszekPortofino hotel marinaSyngap research fundNew yorkRed ball garagePortofino hotelBean boozled

These Dads Drove Over 57 Hours, Livestreamed the Cross-Country Trip on YouTube and Raised $156,000 for Their Kids Rare Genetic Disease

These Dads Drove Over 57 Hours, Livestreamed the Cross-Country Trip on YouTube and Raised $156,000 for Their Kids Rare Genetic Disease
nbcphiladelphia.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from nbcphiladelphia.com Daily Mail and Mail on Sunday newspapers.

United statesPeter halliburtonKyler himesMike gragliaKevin fryeBrett stelmaszekPortofino hotel marinaSyngap research fundNew yorkRed ball garagePortofino hotelBean boozled

From NY to LA: Dads drive across the country to expand awareness for their kids rare disease

Three dads are on a journey to try and raise money for research and development of treatments and therapies that may be able to patients with the rate genetic disorder SYNGAP1.

New yorkUnited statesLos angelesPeter halliburtonMike gragliaDaniella genoveseKevin fryeBrett stelmaszekPortofino hotel in los angelesSyngap research fundTesla model xPortofino hotelFox businessFox news digital

Rare Leader: Nicole Johnson, Executive Directors, FOXG1 Research Foundation

Rare Leader: Nicole Johnson, Executive Directors, FOXG1 Research Foundation
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New yorkUnited statesSands pointTowson universityBruce leuchterBill withersMike gragliaNicole johnsonDaniel fisherOrrin devinskyGabrielle bernsteinJohn crowleyForrest gumpBen fong torresMyron kandelTerry jo bichell