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Community Scoop » Aotearoa Called To #GlowUpShowUp For Rare Disorders Month

Scoop Community provides New Zealand Community news and views ....

Wellington , New-zealand-general , New-zealand , New-zealanders , James-mcgorman , Michelle-arrowsmith , International-rare-disease-day , Voice-of-rare-disorders , Press-release , Rare-disorders , Aotearoa-rare-disorders , Rare-disorders-new-zealand

Community Scoop » New Zealanders Affected By Rare Disorders Share Their Struggles With Education System At International UN-agency Meeting

Scoop Community provides New Zealand Community news and views ....

New-zealand , New-zealanders , Mark-rogers , Michelle-arrowsmith , Nikki-van-dijk , Van-dijk , United-nations , Press-release , Rare-disorders , New-zealanders-nikki-van-dijk , Ehlers-danlos-syndrome , Complex-regional-pain-syndrome

Limiting medicines to improve equity unethical - Pharmac review criticised

A group representing people with rare health disorders has joined other organisations in expressing concern about Pharmac's review of rule 8.1b, related to the funding of child cancer treatments. ....

New-zealand , Michelle-arrowsmith , Rare-disorders , Radio-new-zealand , Nz , Ublic-radio , News , Urrent-affairs , Udio , Odcasts ,

Kiwis with rare disorders want faster progress on 'life or death' health strategy

Kiwis with rare disorders want faster progress on 'life or death' health strategy
stuff.co.nz - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from stuff.co.nz Daily Mail and Mail on Sunday newspapers.

New-zealand , Australia , Wellington , New-zealand-general , Michelle-arrowsmith , David-hughes , Samantha-lenik , Andrew-little , Ministry-of-health , Pharmac-rare-disorders-advisory-committee , Health-authority , Te-whatu-ora-health

'On verge of death' after giving up rugby to save dad's life

'On verge of death' after giving up rugby to save dad's life
stuff.co.nz - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from stuff.co.nz Daily Mail and Mail on Sunday newspapers.

Waikato , New-zealand , Australia , Melbourne , Victoria , United-states , Sydney , New-south-wales , Bay-of-plenty , New-zealanders , Wales-waratahs , Michelle-arrowsmith