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Breaking Barriers in Bleeding Disorders: Experts Call for More Data on Women

“These autosomal diseases, from an inheritance standpoint, affect men and women equally, but because of their impact on the gynecological system and menses, women are often affected much more than men," hematologist Donna DiMichele, MD, explains. ....

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Uptake of new hemophilia gene therapies slow as field assesses options

By Deena Beasley (Reuters) - High cost, logistical issues and the prospect of potential treatment advances are holding back adoption of the first gene. ....

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Uptake of new hemophilia gene therapies slow as field assesses options

High cost, logistical issues and the
prospect of potential treatment advances are holding back
adoption of the first gene therapies for hemophilia, experts
said this week during the American Society. ....

San Diego , United States , Michael Recht , Bob Lojewski , Margaret Ragni , Caroline Humer , Biomarin Roctavian , American Society Of Hematology , National Bleeding Disorders Foundation , University Of Pittsburgh , American Society , Reporting By Deena Beasley Editing , Bill Berkrot ,

Hemophilia Carriers' Reproductive Decisions Linked to Childhood Trauma

A study found that negative experiences and concern for future children's health drive hemophilia carriers to choose prenatal tests, with cognitive factors playing a role. ....

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Dr Margaret Ragni Sheds Light on the Necessity of Testing Hemophilia Carriers

In hemophilia cases where there is uncertainty, especially when your factor level is near the 50% cutoff, genetic testing becomes important, Ragni says. ....

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