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Only 20 out of 107 rare disease patients at KEM hospital avail of Centre's grant for treatment | Mumbai News

The Union government had also established the Digital Portal for Crowd Funding and Voluntary Donations for Patients of Rare Diseases to register such patients and raise money for their treatment via crowdfunding. ....

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Better regulatory mechanism and patient registry; a must for rare disease management; experts at the IHW Council Rare Disease Summit

Better regulatory mechanism and patient registry; a must for rare disease management; experts at the IHW Council Rare Disease Summit
webindia123.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from webindia123.com Daily Mail and Mail on Sunday newspapers.

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Business News | Better Regulatory Mechanism and Patient Registry; a Must for Rare Disease Management; Experts at the IHW Council Rare Disease Summit

Get latest articles and stories on Business at LatestLY. New Delhi [India], July 1: The experts at the Rare Disease Summit emphasised the need for patient registry for accessible treatment opportunities for rare disease patients while deliberating on the various aspects of rare disease management in the country. The summit was organized by the health think tank, Integrated Health and Wellbeing Council in collaboration with AstraZeneca to create awareness on rare diseases and their effective management. Business News | Better Regulatory Mechanism and Patient Registry; a Must for Rare Disease Management; Experts at the IHW Council Rare Disease Summit. ....

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Delhi HC constitutes 5-member panel to implement rare disease policy

Delhi HC constitutes 5-member panel to implement rare disease policy
aninews.in - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from aninews.in Daily Mail and Mail on Sunday newspapers.

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Delhi HC constitutes 5-member panel to implement rare disease policy

The Delhi High Court has constituted a five-member committee to implement the rare diseases policy formulated by the Central Government. ....

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