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Silverdale mom uses TikTok to bring awareness to her son s rare disease
13-year-old Logan has Sanfilippo Syndrome, and his mom shares their life on TikTok in hopes that more awareness will bring a cure. #newdaynw
Author: Suzie Wiley, New Day Northwest
Published: 12:10 PM PDT May 13, 2021
Updated: 12:30 PM PDT May 13, 2021
SEATTLE Silverdale mom Noelle Pacl is a rockstar in our minds. Her son Logan has a rare and fatal disease called MPS III also known as Sanfilippo Syndrome. Sanfilippo Syndrome has no treatment or cure. The life expectancy for Sanfilippo Syndrome is mid to late teens. Logan is 13 years old and doing amazing.  ....

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