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PPHF, Niti Aayog Co-host Global Rare Disease Conference on International Rare Disease Day ANI | Updated: Mar 05, 2021 16:43 IST New Delhi [India], March 5 (ANI/NewsVoir): To call for effective dialogue and decisive action against the alarming challenges of rare diseases in India, People to People Health Foundation (PPHF), a public health organization working towards better healthcare and Niti Aayog, Co-hosted a Global Rare Disease Conference under the initiative Blueprint for Rare Diseases in India - Together for Rare on the International Rare Disease Day (28 February). The virtual conference was co-powered by Takeda Pharmaceutical and was supported by Japan Embassy. Over 7000 rare diseases have been identified globally and experts opine that only 5 per cent of these have identified treatments. The conference witnessed engaging dialogues and discussions from eminent guests who underlined the need for increasing collaborat ....
Karnataka Govt, PPHF chalk out solutions, address key challenges for rare diseases Karnataka Govt, PPHF chalk out solutions, address key challenges for rare diseases 24 February 2021 | News The high-level recommendations which were the outcome of the discussions will be shared with the Indian Government To chalk out solutions and to address the key challenges of rare diseases in India, Government of Karnataka along with People to People Health Foundation (PPHF), a public health organisation working towards better healthcare, organised the third edition of Rare Disease Consultation under the initiative titled ‘Blueprint of Rare Diseases in India’. The virtual conference was aimed at prioritising access, investment, awareness, policy framework and partnerships on rare diseases in the southern states of India. The event was co-powered by Takeda Pharmaceutical and supported by Japan Embassy. ....