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Without that one injection that can cure her SMA and reverse the symptoms, her condition would have seriously deteriorated, according to medical reports. Once the injection is administered, Laveen will be under observation around the clock, and will have to undergo a three-month rehabilitation programme, which will include rehabilitation and physical therapy, as well as weekly laboratory tests. “We have taken all the necessary medical measures for Laveen to take the necessary injection to treat her spinal atrophy disease, and arrangements have been made to ensure the success of the procedure,” said Dr Mohammad Al Awadhi, chief executive officer of Al Jalila Children’s Speciality Hospital, who was quoted in the Arabic daily media. ....
World’s most expensive gene therapy The compassionate gesture will provide the little girl a complete reversal of her genetic condition with what is the world’s most expensive gene therapy worth Dh8 million. The toddler, Laveen Jabbar Al Kutyashi, was diagnosed with Stage II Spinal Muscular Dystrophy (SMA), a genetic condition that delays motor development. Her condition would have progressively deteriorated without this one–time life-saving injection that can cure her SMA and reverse the symptoms so far. Mother in desperate appeal The parents of the little child cannot thank Sheikh Mohammed enough for covering the cost of treatment of their beloved daughter. Shaikh Mohammad was moved by the plight of the child when he watched a video posted by Laveen’s mother on social media appealing for help. ....