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Joint Letter to Key US Government Leadership

Joint Letter to Key US Government Leadership
hrw.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from hrw.org Daily Mail and Mail on Sunday newspapers.

United States , Resource Center , Independent Living Center , University Of Georgia , San Antonio , West Virginia , New Jersey , Tauna Szymanski , Laura Weidner , Carlos Kaiser , Deborah Dagit , Becky Ogle , Philip Kahn Pauli , Janine Bertram , Zan Thornton , Pamelak Auer , Donna Meltzer , Uzra Zeya , Leah Velasco , Tuomas Tuure , Shari Coatney , Denisea Figueroa , Amys Goldman , Ronald Bassman , Liz Mandelman , Millie Gonzalez ,

Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment

Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment
NBA Champion Alonzo Mourning, White House COVID Health Equity Task Force Chair Dr. Marcella Nunez-Smith, Rep. G. K. Butterfield and Leading Rare Disease Experts to Join RDDC on February 23rd for Launch of Diversity Coalition
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WASHINGTON, Feb. 23, 2021 /PRNewswire/ Today, the Black Women s Health Imperative (BWHI) hosts the first public meeting of the Rare Disease Diversity Coalition (RDDC). RDDC seeks to address the pressing challenges faced by marginalized populations and identify potential solutions. Led by BWHI and comprised of a diverse group of healthcare organizations, patient advocacy groups, and industry experts, the RDDC is poised to achieve action in the years to come by: ....

United States , The White House , District Of Columbia , Deric Dube , Beverley Francis Gibson , Laura Weidner , Donna Cryer , Brian Thompson , Saira Sultan , Tammy Boyd , Cassandra Mccullough , Matthewl Watley , Selena Rios , Kim Smith Whitley , Tamar Thompson , Yousra Yusuf , Debbie Drell , Anthonyj Brownlow , Lauren Lee , Linda Goler Blount , Kimberly Haugstad , Amy Hinojosa , Ashley John , Courtney Pieczynski Keplinger , John Burns , Julietk Choi ,

Rare Disease Diversity Coalition Formed To End Racial Disparities in Rare Disease Diagnosis, Research and Treatment

Rare Disease Diversity Coalition Formed To End Racial Disparities in Rare Disease Diagnosis, Research and Treatment
einnews.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from einnews.com Daily Mail and Mail on Sunday newspapers.

United States , The White House , District Of Columbia , Deric Dube , Laura Weidner , Donna Cryer , Brian Thompson , Saira Sultan , Tammy Boyd , Cassandra Mccullough , Matthewl Watley , Lesli Foster , Selena Rios , Kim Smith Whitley , Tamar Thompson , Yousra Yusuf , Debbie Drell , Anthonyj Brownlow , Lauren Lee , Linda Goler Blount , Kimberly Haugstad , Amy Hinojosa , Ashley John , Courtney Pieczynski Keplinger , John Burns , Julietk Choi ,

Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment

Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment
prnewswire.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from prnewswire.com Daily Mail and Mail on Sunday newspapers.

United States , The White House , District Of Columbia , Deric Dube , Beverley Francis Gibson , Laura Weidner , Donna Cryer , Brian Thompson , Saira Sultan , Tammy Boyd , Cassandra Mccullough , Matthewl Watley , Selena Rios , Kim Smith Whitley , Tamar Thompson , Yousra Yusuf , Debbie Drell , Anthonyj Brownlow , Lauren Lee , Linda Goler Blount , Kimberly Haugstad , Amy Hinojosa , Ashley John , Courtney Pieczynski Keplinger , John Burns , Julietk Choi ,

Epilepsy Foundation and Maryland Elected Officials Champion Seizure Safe School Legislation

LANDOVER, Md.
The Epilepsy Foundation today announced the introduction of Brynleigh’s Act (SB 0225 and HB 0370) in the Maryland legislature. This bill ensures that all school personnel will be trained to recognize and respond appropriately to students experiencing seizures. Five states Kentucky, Indiana, Texas, New Jersey, and Illinois have successfully passed Seizure Safe School legislation, while several other states have introduced similar bills in the current session. The bill, named after 6-year-old Brynleigh Shillinger, was originally introduced during the 2020 state legislative session. Hearings were held, but the bill subsequently stalled due to the ongoing pandemic. The bill will be heard by both the House Ways & Means Committee and Senate Education, Health, and Environmental Affairs Committee on January 20. ....

United States , New Jersey , Frederick County , Montgomery County , Laura Weidner , Brynleigh Shillinger , Lauren Shillinger , Epilepsy Foundation , World Health Organization , Environmental Affairs Committee On , Us Centers For Disease Control Prevention , Us Food Drug Administration , Seizure Safe School , Senate Education , House Ways Means Committee , Act Will Protect , House Ways , Means Committee , Environmental Affairs Committee , State Senator Ronald Young , Senator Brian Feldman , Delegate Ken Kerr , Vice President , Government Relations , Seizure Action Plans , Drug Administration ,