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WPVI Action News Weekend 6PM December 6, 2015

Abc Elizabeth Herr is live with more on what we can expect to hear from the president tonigh tonight, elizabeth. Good evening to you. White house Officials Say tonight dont expect major policy announcements the president is aware the country is very concerned so he could call on kang gross take action. We have gun shots, we have gun shots. And the attack in San Bernardino is forcing Law Enforcement officials and communicate toy wrestle with possibility of new home grown terror threats prompting president obama to give a Rare Oval Office address it a shaken nation. I think hell talk about actions since not just 9 11 but paris to keep americans safe. Huddled with
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These Families Raised Millions To Fund Treatment For Their Kids' Genetic Disorders. It Hasn't Happened.

KCUR
Kim and Nate Fry of Kansas City, Missouri, are raising money to fund research on a treatment for a rare genetic disorder that affects their son, Charlie.
The growing trend of family-funded research concerns some medical ethicists, who say that suggestions to parents that treatments may be imminent can raise thorny ethical issues.
Over the last several years, parents from across the country have appeared on television and news outlets to raise money to develop treatments for their children with rare genetic disorders.
Many of these families, including one from Kansas City, Missouri, have pinned their hopes on one Texas researcher, Dr. Steven Gray of the University of Texas Southwestern Medical Center in Dallas, who claims to be on the verge of treating a number of rare conditions. They ve raised millions of dollars to fund his research, although breakthroughs haven t happened to the extent many had hoped. ....

New York , United States , North Carolina , University Of Texas Southwestern Medical Center , Chapel Hill , Terry Pirovolakis , Laura King Edwards , Phillip Donenberg , Alex Smith Amber , Tay Sachs , Sean Nolan , Jocelyn Duff , Steven Gray , Megan Allyse , Kasey Woleben , National Institutes Of Health , Pizza Hut , Kansas City , Texas Southwestern Medical Center , Mayo Clinic , Taysha Gene Therapies , Amber Freed , Cure For , National Institutes , Good Morning America , Gray Parents ,

These Families Raised Millions To Fund Treatment For Their Kids' Genetic Disorders. It Hasn't Happen

Originally published on January 25, 2021 11:40 am
Over the last several years, parents from across the country have appeared on television and news outlets to raise money to develop treatments for their children with rare genetic disorders.
Many of these families, including one from Kansas City, Missouri, have pinned their hopes on one Texas researcher, Dr. Steven Gray of the University of Texas Southwestern Medical Center in Dallas, who claims to be on the verge of treating a number of rare conditions. They ve raised millions of dollars to fund his research, although breakthroughs haven t happened to the extent many had hoped.
While gene therapy holds great promise, the growing trend of family-funded research concerns some medical ethicists, who say that suggestions to parents that treatments may be imminent can raise thorny ethical issues. ....

New York , United States , North Carolina , University Of Texas Southwestern Medical Center , Chapel Hill , Terry Pirovolakis , Laura King Edwards , Phillip Donenberg , Tay Sachs , Sean Nolan , Jocelyn Duff , Steven Gray , Megan Allyse , Kasey Woleben , National Institutes Of Health , Pizza Hut , Kansas City , Texas Southwestern Medical Center , Mayo Clinic , Taysha Gene Therapies , Amber Freed , Cure For , National Institutes , Good Morning America , Gray Parents , Willow Canaan ,