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Refused treatment: Kiwi teen accused of faking bowel illness

An 18-year-old girl diagnosed with likely Ehlers-Danlos Syndrome (EDS) has been refused treatment in New Zealand as doctors claim she is faking her symptom ....

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Ehlers-Danlos Syndrome: Havelock North family fights to fund a future in the wake of tragedy

A Hastings family who drained their bank accounts to fight the cancer that would kill their father now face more heartbreak as his daughter, who has a rare. ....

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Three Kiwi women with 'invisible illness' die in three months

Three Kiwi women diagnosed with Ehlers-Danlos Syndrome (EDS) who struggled to have their illness recognised have died in the last three months. Now an advo ....

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Community Scoop » Ehlers-Danlos Syndromes New Zealand

Scoop Community provides New Zealand Community news and views ....

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Ehlers-Danlos Syndromes New Zealand

Ehlers-Danlos Syndromes (and hypermobility spectrum disorders) are 13+ types of a rare connective tissue disorder. Hypermobile type, our most prevalent type, is currently noted as 1:3100 1, but is thought to be more prevalent as described; the . ....

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