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Time he s 6 years old. without an effective treatment, jonah won t expect to live beyond his teens. when he s not at the park with his son, jonah s dad works on elementary. and he said that he wanted to do something for us to help the people that he s standing next to, essentially. something that he s good at that could leverage his position to help us out. i spend every day with this man and i look at him and he radiates calm and he has the toughest job on our set. a very difficult, high-pressure job and i see this man and he is this source of calm. he s very funny, very good ....
To go. they stumble, fall, then they re in a wheelchair. reporter: many people might hear this information and become paralyzed. but you, you have hit the ground running. i had to. i had to. there really isn t any treatment for us. and just knowing that i have a chance i have this big of an opening to make it. you know? that jonah has a chance. so that s, that s what keeps me going. who is that? reporter: she is on a crusade working 24/7 to find a cure for her son before the disease renders him unable to move, communicate and breathe on his own. she started a nonprofit, jonah s just begun to raise awareness and fund research. impossible, she says, without the help of family and friends and working day and night to find other children with san felipo type c that will participate in the first study ever of the syndrome. ....
Now, jonah is missing an enzyme necessary for survival. without it, material will build up in his brain. jonah will slowly die before he is 20. their airway closes up, they have a hard time swallowing and eating. eventually their muscles start to go. they stumble, fall, then they re in a wheelchair. reporter: many people might hear this information and become paralyzed. but you, you have hit the ground teallany t and just knowing that i have a chance i have this big of an opening to make it. you know? that jonah has a chance. so that s, that s what keeps me going. who is that? reporter: she is on a crusade working 24/7 to find a cure for her son before the disease renders him unable to move, communicate and breathe on his own. she started a nonprofit, jonah s just begun to raise awareness and fund research. impossible, she says, without the help of family and friends and working day and night to find other children with san felipo type c that will ....
what a tale your thoughts could tell and finally this half hour, too many americans as we all know can relate to being unemployed. in georgia they have run out of ideas to help those out of work until the state came up with an outside the box idea. here s steve osunsami. reporter: a deal the state of georgia offered to rene turner and every one of the half million unemployed workers here. after four long months of searching she started work at a job she created. her employer pays nothing for a ....
Doing what they can. as hundreds gathered to celebrate the life of david hartley, his family struggles to cope with his death and disappearance of his body. shouldn t be that hard to get him home. it feels like another continent. just right over there. reporter: right over there is falcon lake, a reservoir, on the u.s.-mexican border where david s wife tiffany says the two were ambushed by mexican pirates. tiffany escaped. david did not. will-are you sure your husband was shot? reporter: a week later, david s body is still missing. the mexican foreign relations ministry issued a statement, saying the country is committed to the investigation of those acts. they said they have been in contact with the u.s. to coordinate the search and recovery of hartley s body. however, abc news visited the area where tiffany said the shooting happened and has seen no sign of search efforts. texas governor rick perry says he personally ....