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Wisconsin brothers receive new accessibility vehicle

A big blessing this Easter season for one Wisconsin family with three brothers all have coped with a debilitating medical condition. ....

Columbia County , United States , Kelly Fitzpatrick , Finnegan Mcvey , Pete Rankin , Jett Foundation , Infinity Infusion Nurse Pete Rankin , Duchenne Muscular Dystrophy , App Human Interest , Op Stories , Human Interest , Kathryn Larson ,

Wisconsin brothers receive new accessibility vehicle

A big blessing this Easter season for one Wisconsin family with three brothers, all have coped with a debilitating medical condition. ....

Columbia County , United States , Kelly Fitzpatrick , Finnegan Mcvey , Pete Rankin , Jett Foundation , Infinity Infusion Nurse Pete Rankin , Duchenne Muscular Dystrophy ,

StrideBio Expands Leadership Team with Accomplished Industry Executives

StrideBio Expands Leadership Team with Accomplished Industry Executives
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United States , University Of Arizona , Boston University , France General , Mavis Agbandje Mckenna , Mike Havert , Jodi Wolff , Jerryl Pettis , Aravind Asokan , Sapan Shah , Ariane Hamaide , Sandra Lueken , Susan Sharpe , Astrazeneca Biologics Medimmune , Robert Hughes , Johns Hopkins University , Corporate Development At Cellectis , Clinical Services For The Muscular Dystrophy Association , Northern Virginia Community College , Stridebio Inc , Research Triangle Park , Indiana University , National Institutes Of Health , Regulatory Affairs , Arizona State University , Mineral Metabolism Research ,

It did take a village... to get a new handicap-accessible van for Aaron

Jodi Summit
TOWER- The Caravan had only 5,000 miles and was equipped with a side lift and modern safety features for a passenger in a wheelchair. It was just what the Raj family of Tower was looking for. And thanks to local donations and a dollar-for-dollar matching grant from the Jett Foundation, it is now safely parked in the Rajs’ garage.
The van is not only safer to drive than the 20-year-old model the family had been using to transport their 19-year-old son Aaron, who uses an electric wheelchair, but also has many more safety features for the passengers. Aaron really appreciates the secure tie-down system, as well as the adjustable seatbelt, which holds him and his chair securely in place during their travels. Everyone enjoys the better suspension, which is making travel, especially on bumpy winter roads, more pleasant. ....

United States , Melanie Raj , Jett Foundation , Martin Catholic Church , Catholic Church , Mesabi East , ஒன்றுபட்டது மாநிலங்களில் , மெலனி ராஜ் , ஜெட் அடித்தளம் , மார்டின் கத்தோலிக் தேவாலயம் , கத்தோலிக் தேவாலயம் , மீசாபி கிழக்கு ,

Gina Glass, Executive Director, Dreamsickle Kids Foundation

Gina Glass, Executive Director, Dreamsickle Kids Foundation
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Headquarters: Las Vegas, Nevada
How did you become involved in rare disease: I have a five-year-old daughter and she was diagnosed at birth with sickle cell disease.
Previous career: Insurance agent
Education: B.S. in criminal justice/law enforcement administration from the University of Phoenix, associate in general insurance designation from The Institutes
The Organization
Organization’s mandate: Our focus is increasing awareness in Nevada for sickle cell disease. We are advocating for policy changes, addressing the health disparities that affect people with sickle cell disease and minorities in general in the state of Nevada. And we also support those affected by any rare disease in Nevada. ....

United States , Tupac Shakur , Rebecca Skloot , Las Vegas , Sickle Cell Disease Association Of America , Jett Foundation , University Of Phoenix , Dreamsickle Kids Foundation , Dreamsickle Kids , Media Links , Sickle Cell , Warrior Drive , Three Sicklers , Bold Lips , Sickle Cell Disease Association , Immortal Life , Henrietta Lacks , Low Down Dirty , ஒன்றுபட்டது மாநிலங்களில் , ட்யூப்யாக் ஷாகுர் , லாஸ் வேகாஸ் , அரிவாள் செல் நோய் சங்கம் ஆஃப் அமெரிக்கா , ஜெட் அடித்தளம் , பல்கலைக்கழகம் ஆஃப் பீனிக்ஸ் , மீடியா இணைப்புகள் , அரிவாள் செல் ,