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He had a gentle soul : 9-year-old Greensboro boy with rare disorder dies Caleb MacKay, 9, was a student at Gateway Education Center and was featured many times in stories that impacted special needs children in the Triad. Author: Adaure Achumba Updated: 2:03 PM EST January 19, 2021 GREENSBORO, N.C. A Greensboro family is in mourning after the loss of their 9-year-old son, Caleb Robert MacKay. Little Caleb died on Saturday, January 9, 2021, at Moses Cone Memorial Hospital and was surrounded by his family during his last moments. His body finally succumbed to a years-long battle with an extremely rare neurodegenerative disorder caused by a mutation in the IRF2BPL gene, the obituary said. ....