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Capital Region parents push for FDA reform of rare disease drug reviews


Capital Region parents push for FDA reform of rare disease drug reviews
Federal legislation would require rare disease experts, patients weigh in when drugs come up for review
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U.S. Rep. Paul Tonko, D-NY, holds a virtual discussion on legislation he says would strengthen the FDA review process for approving rare disease treatments.Screenshot
Capital Region parents are helping lead the push for bipartisan federal legislation that advocates say would lead to better, easier and more affordable treatment for rare diseases.
The parents, all of whom have children in the area with rare conditions, spoke out about the legislation Monday during a virtual roundtable event with U.S. Rep. Paul Tonko, who says the Helping Experts Accelerate Rare Treatments (HEART) Act would lead to “some of the greatest progress” the U.S. has taken against rare diseases since the Orphan Drug Act of 1983 incentivized the development of drugs to fight them. ....

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Ziel Medaille: Handballer haben Lust auf Olympia - Muss mit uns rechnen

Ziel Medaille: Handballer haben Lust auf Olympia - Muss mit uns rechnen
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