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Two Lloydminster residents rallying support around child's rare disorder treatment


Two Lloydminster residents rallying support around child’s rare disorder treatment
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Max Sych was diagnosed with Spinal Muscular Atrophy type 2 in November 2020. A treatment option, Zolgensma, is available in the United States for $2.8 million and must be administered to the child before he turns two years old. (Supplied Bowden Sych, GoFundMe)
A Fairview toddler needing a life-altering gene therapy is getting a helping hand from people across the province here in Lloydminster.
Max Sych, who has the affectionate nickname Mighty Max, was recently diagnosed with Spinal Muscular Atrophy type II. A rare neuromuscular disease in the part of the nervous system controlling voluntary muscle movement, people with SMA Type II will experience difficulty walking, sitting up on their own, swallow or breathe. ....

Jenny Bennett , Alecia Denis , Health Canada , Mighty Max , Spinal Muscular Atrophy , Cherish Death , Hampton Inn West , நியாயமான பார்வை , ஜென்னி பென்னட் , அலெசியா டெனிஸ் , ஆரோக்கியம் கனடா , வலிமைமிக்க அதிகபட்சம் , முதுகெலும்பு தசை அட்ரோஃபீ , நேசத்துக்குரிய இறப்பு , ஹாம்ப்டன் சத்திரம் மேற்கு ,