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We have the ability to offer potentially curative therapies, and we are letting our children down by not screening for these conditions because those devastating conditions are so preventable if you can identify them at birth, and then offer these kinds of innovative therapies. as forjake and allie shaw, they don t yet know how much time they ll have with nala whether it s months or years. sing-song: nala charlie shaw. one thing they re certain of is wanting to ensure other families are spared what they re going through. it s too late for our child, but i would like to think that if another child was born, it could be picked up quick enough for them to be saved. i just want to get as much awareness out there as possible and i thinkif there s the more awareness we have and the more people pushing for it to be put on the blood spot test, then it s a good place to start, isn t it? ....
Are so preventable if you can identify them at birth, and then offer these kinds of innovative therapies. as forjake and allie shaw, they don t yet know how much time they ll have with nala whether it s months or years. one thing they re certain of is wanting to ensure other families are spared what they re going through. it s too late for our child, but i would like to think that if another child was born, it could be picked up quick enough for them to be saved. ijust want to get as much awareness out there as possible, and i think the more awareness we have and the more people pushing for it to be put on the blood spot, then it s a good place to start, isn t it? years, we spent not knowing what was wrong with nala and if there was more awareness about it, we could ve caught this earlier, and maybe we wouldn t be in this position. ....
We have the ability to offer potentially curative therapies, and we are letting our children down by not screening for these conditions because those devastating conditions are so preventable if you can identify them at birth, and then offer these kinds of innovative therapies. as forjake and allie shaw, they don t yet know how much time they ll have with nala whether it s months or years. one thing they re certain of is wanting to ensure other families are spared what they re going through. it s too late for our child, but i would like to think that if another child was born, it could be picked up quick enough for them to be saved. ijust want to get as much awareness out there as possible, and i think the more awareness we have and the more people pushing for it to be put on the blood spot, then it s a good place to start, isn t it? years, we spent not knowing what was wrong with nala and if there was more awareness ....