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'My daughter died before doctors could figure out what was wrong with her'

'My daughter died before doctors could figure out what was wrong with her'
walesonline.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from walesonline.co.uk Daily Mail and Mail on Sunday newspapers.

United Kingdom , Rhondda Cynon Taf , Amy Hughes , University Hospital Of Wales , Welsh Health Specialised Services Committee , Vale University Health Board , Rare Diseases Implementation Group , Rhondda Cynon , University Hospital , Welsh Government , Swan Clinic , Graham Shortland , Wales Rare Diseases Action Plan , Prof Iolo Doull , Wales Rare Disease Plan ,

The woman with an illness so rare it does not have a name

Debbie Schwartz, 47, from Cardiff, spent her childhood visiting doctors. She is now one of the first patients at Britain s first commissioned clinic for people suffering with syndromes without a name ....

United States , United Kingdom , City Of , Debbie Schwartz , Graham Shortland , University Hospital Of Wales , Rare Diseases Implementation Group , Syndromes Without , University Hospital , Mitochondrial Disease , Welsh Government , Iolo Doull ,