edward has been transformed. zoe conway has been to meet him and his mum, megan. he s just my little boy, just completely in awe of him, he s like the strongest little baby i know. i m just so proud of him. he s just doing so well. edward was born with the genetic condition spinal muscular atrophy. it causes progressive muscle weakness. as a baby, edward became floppy, he couldn t move his legs. doctors feared that one day he might lose the ability to breathe. and then along came the most expensive drug in the world zolgensma. it costs £1.8 million, although the nhs got a discount and approved it for use last may. this is edward being given zolgensma via a drip last august. the one off treatment lasted an hour. in that time, his life was transformed. his muscle tone is a lot stronger.
but it rings hollow in a country that disagrees on how to define an attack that almost broke its democracy. nomia iqbal, bbc news, washington. last year the world s most expensive drug was approved for use in the uk for the treatment of the rare genetic disorder, spinal muscular atrophy. one year old edward was given zolgensma in august, and it s changed his life. zoe conway reports. he s just my little boy, just completely in awe of him, he s like the strongest little baby i know. i m just so proud of him. he s just doing so well. edward was born with the genetic condition spinal muscular atrophy. it causes progressive muscle weakness. as a baby, edward became floppy, he couldn t move his legs. doctors feared that one day he might lose the ability to breathe. and then along came the most expensive drug in the world zolgensma.
to the latest figures. meanwhile the armed forces have sent 200 personnel into hospitals across london to help with staff shortages. dementia cases are expected to almost triple across the world by 2050. experts say it s down to ageing and growing populations. injune, zolgensma, a highly effective treatment for the rare genetic disorder spinal muscular atrophy, was approved for use on the nhs. it s the world s most expensive drug and has the potential to save the lives of babies with the condition. one year old edward was given the drug in august, and it s changed his life. zoe conway has been to meet him and his mum, megan. he s just my little boy, just completely in awe of him, he s like the strongest little baby i know. i m just so proud of him. he s just doing so well. edward was born with the genetic condition spinal muscular atrophy. it causes progressive
atmosphere. kids are pleased to be here. it is going to be a tough time. ,., ., .~ here. it is going to be a tough time. a ., here. it is going to be a tough time. ., i. here. it is going to be a tough time. ., ., time. good luck to you for the term ahead. time. good luck to you for the term ahead- head time. good luck to you for the term ahead. head teacher time. good luck to you for the term ahead. head teacher of time. good luck to you for the term ahead. head teacher of high - time. good luck to you for the term | ahead. head teacher of high tunstall in hartlepool. one in 10,000 babies are affected by a genetic disorder called spinal muscular atrophy, which causes muscle weakness. most babies with the condition won t live beyond the age of two without intervention. but last year, the world s most expensive drug was approved for use on the nhs to fight it and already the life of one year old edward has been transformed. zoe conway has been to meet him and his mum, megan. he
last year, zolgensma, a highly effective treatment for the rare genetic disorder spinal muscular atrophy was approved for use on the nhs. it s the world s most expensive drug and has the potential to save the lives of babies with the condition. one year old edward was given the drug in august and it s changed his life. zoe conway has been to meet him and his mum megan. he s just my little boy, just completely in awe of him, he s like the strongest little baby i know. i m just so proud of him. he s just doing so well. edward was born with the genetic condition spinal muscular atrophy. it causes progressive muscle weakness. as a baby, edward became floppy, he couldn t move his legs. doctors feared that one day he might lose the ability to breathe. and then along came the most expensive drug in the world zolgensma.